Fibrous Dysplasia Foundation and NORD Launch Cutting-Edge Study of Fibrous Dysplasia/McCune-Albright Syndrome

The research study is open to participants worldwide to advance understanding and treatments for a rare disease affecting the bone, skin and endocrine organs WASHINGTON, DC–(November 03, 2016) – The Fibrous Dysplasia Foundation and the National Organization for Rare Disorders announce the launch of an ambitious study to research fibrous

Fibrous Dysplasia Foundation Interviews FD/MAS Patient Registry Project Lead

Deanna Portero, Executive Director of the Fibrous Dysplasia Foundation, sat down with Lisa Heral, FD/MAS Patient Registry Project Lead, to learn more about about patient registries, and why it’s so important that we start one for fibrous dysplasia/McCune-Albright syndrome. To read the interview, please visit the article: https://www.fibrousdysplasia.org/7-questions-and-answers-about-the-fdmas-patient-registry/